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Sunday, May 26, 2013

Tyler

Posted 9:16 pm  Wednesday, January 30, 2013


Barrel race helps raise funds for girl with genetic disorders
By KELLY GOOCH
kgooch@tylerpaper.com

A Run For Hope Benefit Barrel Race for a 2-year-old East Texas girl was a success, according to an email from her mother.

The benefit, which was designed to help the family of Tiffany Wolven, a girl with multiple genetic disorders, was postponed because of heavy rain.

The event did eventually take place Jan. 19 at the Tyler Saddle Club Arena, a covered facility in Mount Selman.

Tiffany’s mother, Tammy Wolven, said via email that there were 96 total entries in the open division as well as many donated silent auction items.

“The arena was fast and so were the times. Horses and riders brought their A-game to the event,” she wrote.

First division winners are: Mimi Cundieff, Ashton Sockwell, Katie Strange, Gracie Gambins and Jana Beam, according to Mrs. Wolven’s email. Second division winners are: Haley Jobe, Clare Robertson, Kacey Kirby, Carly Blackmer and Donna Reeves. Third division winners are: Sue Benton, Gillian Furgeson, Sharon Littlefield, Tammy Wolven and Brooke May. Fourth division winners are: John Derfus, Delinda Hukill, Mattie Baldwin, Stacy Wolf and Kat Palladino.

Mrs. Wolven said the barrel race raised about $4,000 to help Tiffany with her medical care. She thanked those who donated.

Tiffany was born with a skin-covered cyst on the back of her head, which was repaired at 10 weeks old, and was diagnosed with several rare genetic diseases: Arn-old-Chiari type III, which affects her bone structure; Meckel-Gruber syndrome, which affects her lungs and kidneys; and Sandifer’s syndrome, which causes seizures. She also has a movement disorder.

She is listed as day-to-day, meaning she could die at any moment.

“You have to live in the everyday moment-to-moment, because one minute you can have her, (and) the next minute she can succumb to complications,” Mrs. Wolven told the Tyler Morning Telegraph in November.

She said that Tiffany still has good days and bad. She is scheduled to see a pain management specialist next month in Oklahoma.



Tammy Wolven of Flint competes in the Run for Hope Benefit Barrel Race, a fundraiser for her daughter, Saturday at Tyler Saddle Club Arena in Mount Selman. Proceeds from the event will help with medical expenses for two-year-old Tiffany Wolven, of Flint. Tiffany was born with three rare genetic disorders. She has had five stomach surgeries and two brain surgeries and is only 23 months old.
(Sarah A. Miller/Staff)
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